NEW YORK, Sept. 26, 2016 /PRNewswire-USNewswire/
-- The Michael J. Fox Foundation for Parkinson's Research
(MJFF) is one of 14 finalists selected to attend the "Inspiring
Hope" Ideathon, an initiative to raise awareness of clinical trial
participation and develop solutions to address this critical need
in the research process. The Foundation was chosen for its
submission around promotion of its online clinical study Fox
Insight, a platform for people with Parkinson's disease and their
loved ones to contribute health and wellness data from their own
homes to help shape research priorities toward better
treatments.
Members of the Fox Insight team will participate in a two-day
workshop hosted by the Center for Information and Study on Clinical
Research Participation and INC Research Holdings, Inc. in
Boston on September 27 – 28 to further develop and
cultivate plans for enhanced recruitment of the study tool. One
winning project will be awarded $10,000 toward implementation of their idea.
Across all diseases, 85 percent of clinical trials finish late
due to difficulties enrolling participants and nearly one-third of
trials fail to recruit a single subject. Leveraging technology to
remove traditional research participation barriers (such as
geography, transportation, cost and time), Fox Insight gathers
user-generated data through digital questionnaires and smart
devices. MJFF will make de-identified study data available to the
scientific community to broaden understanding of the experience of
Parkinson's disease and inform patient-centric research priorities
and therapeutic discovery. Currently with 4,800 participants, the
study aims to enroll an additional 10,000 study participants in
2017.
"We're honored to have been selected as a finalist and to be a
part of a larger conversation around clinical trial participation
awareness. Many patients don't realize they have an important role
to play in research," said Sohini
Chowdhury, senior vice president of research partnerships at
MJFF. "With tools like Fox Insight, we hope to engage more people
into the process and let them know they can help shape the research
conversation through their participation."
The Ideathon workshop will allow MJFF to collaborate with other
field-wide innovators to define advanced strategies for meeting
this recruitment goal. All finalists will present their refined
project proposals to a panel of judges, who will award the
$10,000 prize at the end of the two
days.
For more information about Fox Insight, visit
www.foxinsight.org
About The Michael J. Fox Foundation for Parkinson's
Research
As the world's largest nonprofit funder of Parkinson's research,
The Michael J. Fox Foundation is dedicated to accelerating a cure
for Parkinson's disease and improved therapies for those living
with the condition today. The Foundation pursues its goals through
an aggressively funded, highly targeted research program coupled
with active global engagement of scientists, Parkinson's patients,
industry leaders, government research funders and regulators,
clinical trial participants, donors and volunteers. In addition to
funding more than $650 million in
research to date, the Foundation has fundamentally altered the
trajectory of progress toward a cure. The Foundation increases the
flow of participants into Parkinson's disease clinical trials with
its online tools Fox Trial Finder and Fox Insight; sponsors a
landmark international study to find reliable and consistent
biomarkers of Parkinson's progression; promotes Parkinson's
awareness through high-profile events and outreach; advocates for
state and federal policies that support medical research and
increased access to health care; and coordinates the involvement of
thousands of Team Fox members and grassroots volunteers around the
world.
For more information, visit www.michaeljfox.org.
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SOURCE The Michael J. Fox Foundation