LOS
ANGELES, Feb. 7, 2025 /PRNewswire/ -- Following a
comprehensive planning process, 15 independent nonprofit
organizations from around the country have formalized ALS United,
an innovative partnership dedicated to serving the ALS community.
This new nonprofit membership organization is committed to serving
the ALS community in a collaborative approach by providing
comprehensive local care and support to individuals and families
affected by ALS, advancing state and national advocacy efforts, and
fostering bold global research initiatives.
The founding members of ALS United include ALS Arizona, ALS
Network, ALS New Mexico, ALS of Nevada, ALS United Ohio, ALS
United Connecticut, ALS United of Georgia, ALS United Greater Chicago, ALS
United Greater New York, ALS United Mid-Atlantic, ALS United North
Carolina, ALS Northwest, ALS United Orange County, ALS United Rhode
Island, ALS United Rocky Mountain. Together, these organizations
serve a substantial portion of the U.S. ALS population.
ALS United, and its members, stand as a transformative force in
the fight against ALS, leveraging more than a century of combined
expertise and collaborations with over 90 multidisciplinary ALS
clinics and leading medical experts nationwide to ensure access to
the highest standard of care and innovative advancements in the
field. These partnerships enable ALS United member organizations to
deliver comprehensive community-based support, offering grants,
support groups, medical equipment loans, and access to nurses and
social workers. By combining personalized care with a focus on
advancing research, ALS United drives innovation and progress
toward a cure.
In addition to clinical partnerships, ALS United members
exemplify a steadfast commitment to ALS research through
substantial investments across a wide spectrum of initiatives.
Funding priorities span groundbreaking programs such as
Accelerating Medicines Partnership® in Amyotrophic Lateral
Sclerosis (AMP® ALS), and the ALS Research Innovation
Initiative.
These efforts are bolstered by collaborations with esteemed
organizations like the Northeast ALS Consortium (NEALS), and the
American Brain Foundation. By
uniting resources and expertise, ALS United not only prioritizes
immediate patient care but also fuels long-term advancements in the
understanding and treatment of ALS.
Building on these foundational partnerships and research
initiatives, ALS United remains focused on addressing the most
immediate needs of the ALS community. In January 2025, ALS United analyzed results from a
comprehensive community survey, revealing the pressing needs and
priorities of those living with ALS. The ALS community identified
three critical priority areas for the year ahead: expanding
research and clinical trial access, enhancing financial support
systems, and improving healthcare access and coverage.
Through collaborative advocacy and proactive engagement at both
federal and state levels, ALS United aims to create lasting,
meaningful change for those affected by ALS. This innovative,
community-driven approach represents a bold new direction in the
fight against ALS, uniting top medical expertise, cutting-edge
research, and personalized support to address the most pressing
needs of those living with the disease. Guided by the vision that
'Together, we end ALS,' ALS United is transforming how care is
delivered, and progress is made, bringing fresh hope to the ALS
community.
"ALS United embodies the collective vision of our
founding members to deliver local support with national impact.
This collaboration enables us to harness decades of expertise,
drive bold innovation, and advocate for transformative change. We
are proud to take this vital step forward in the fight against
ALS," said Jerry Dawson,
President and CEO, ALS United.
ALS, commonly known as Lou
Gehrig's disease, is a fatal, progressive neurodegenerative
disease affecting nerve cells in the brain and spinal cord. ALS
gradually results in the loss of the ability to walk, speak, move,
and eventually breathe.
For more information on ALS United, its mission, and its
initiatives, please visit alsunited.org.
Contact: Jerry Dawson
Phone: (971) 410-0075
Email: info@alsunited.org
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SOURCE ALS United
